GovWire

Call for evidence outcome: Code on Genetic Testing and Insurance: call for evidence

Department Of Health

April 25
10:16 2024

Detail of outcome

We received 57 responses to our call for evidence, which ran over a 12-week period from July to October 2023. This included 11 responses from individuals who wanted to share their personal views and experiences, 29 responses from individuals sharing their professional views and 17 responses from organisations.

The results suggest that while the Code on Genetic Testing and Insurance remains fit for purpose, future amendments may be needed to reflect gradual changes in the genomics landscape. We will continue to explore the need for potential future amendments through stakeholder workshops, to be held later this year.


Original call for evidence

Summary

We are seeking views on the Code on Genetic Testing and Insurance, to help us decide whether it may need to be revised to ensure it remains beneficial to both consumers and the insurance industry.

This call for evidence ran from
to

Call for evidence description

The Code on Genetic Testing and Insurance (the Code) is a voluntary agreement between the UK government and the Association of British Insurers which provides guidance on the role of genetic testing in insurance across the UK.

This call for evidence is seeking views from individuals and organisations, including those with genetic conditions, family members and carers, healthcare professionals, the insurance industry and the public, to ensure the Code remains beneficial for both consumers and the insurance industry. The responses will be used to inform whether the Code may need to be revised to ensure it remains fit for purpose.

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